Just an update

Luke has had to endure this five times now in the last eight weeks.  Thankfully, this time we get to have him at home for the EEG instead of being stuck in the hospital.  Modern technology is amazing!  This one is 48 hours, so the poor guy will have to be hooked up to these machines and pretty much stay in this spot (since it's also a video recording) for the next two days.  He had an emergency 24-hr EEG at the hospital last weekend which showed no seizures, according to our previous neurologist.  Several of Luke's therapists urged us to switch doctors, so we saw another neurologist this past week who specializes in epilepsy/seizure disorders.  He was not so convinced that the seizures have completely vanished due to some leg and eye movements, thus the 48-hr EEG this weekend.  We will meet with him on Wednesday to discuss the results and next steps.  Luke had his final steroid injection today (his 9-month birthday present!), thank goodness.  Eight weeks of that medication sure has taken its toll on his little body.  Even with everything he's been going through, he still manages to brighten our days with this...

 

Jackson has had an exciting few weeks.  He turned 3 on May 23rd and loves to proudly proclaim this to anyone and everyone he sees, whether it's the postman or a Starbucks barista.  He looked so handsome in his tuxedo for Uncle Tony and Aunt Kristi's wedding, but too bad he refused to walk down the aisle as soon as he saw all of the people in the church.  Good thing he had a co-ring bearer (his cousin, Will) to pick up the slack.  We also took him to see his first MLB game last weekend.  Much to my dismay, it was a White Sox game (he will definitely be seeing a Cubs game this summer as well!), but we did have great seats right behind the Sox dugout.  Jackson was in awe until the fireworks went off after a home run and he was ready to go home.  I guess we won't be taking him to see fireworks on the 4th of July unless we have some good ear plugs.

 
Olivia sure does know how to make a person feel great because she will smile the biggest smile at a perfect stranger.  She certainly, at least for now, does not have the stranger anxiety that her big brother had as a baby.  She continues to be incredibly curious about everything!  Something tells me we might have to watch out for her as soon as she's on the move.  Olivia is getting physical therapy once a week and will start weekly speech therapy in the next couple of weeks as well.  She actually loves her PT sessions and has shown vast improvements already with sitting up on her own and getting up on all fours.  Can't get enough of this girl...